Quality of Life and Human Difference
Genetic Testing, Health Care, and Disability
Part of Cambridge Studies in Philosophy and Public Policy
- Editors:
- David Wasserman, University of Maryland, College Park
- Jerome Bickenbach, Queen's University, Ontario
- Robert Wachbroit, University of Maryland, College Park
- Date Published: May 2005
- availability: Available
- format: Hardback
- isbn: 9780521832014
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The role of quality assessments in social policy, especially health policy, and ethical and social issues raised by prenatal testing for disability are discussed in this analysis. A theme of the literature has been the role played by controversial assumptions about the quality of life of people with disabilities. This book turns the perspectives of disability scholars to issues that have largely been the province of health methodology, policy and philosophy, while re-directing philosophical policy analysis to problems that have largely been the province of disability scholarship.
Read more- Brings together two important literatures - one concerns the role of quality assessments in social policy and the second concerns ethical and social issues raised by prenatal testing for disability
- Turns disability scholars onto health methodology, policy and philosophy issues while angling philosophical policy analysis on problems that have been the province of disability scholarship
- Will be sought after by bioethicists, philosophers and specialists in disability studies and healthcare economics
Reviews & endorsements
"The nine essays bring together ethical concerns relating to the prenatal testing of fetuses for disease and/or disability, and quantitative assessments of quality of life used to measure the cost-effectiveness of efficiency of health care interventions....Highly recommended." -CHOICE, H.J. John, emerita, Trinity College
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×Product details
- Date Published: May 2005
- format: Hardback
- isbn: 9780521832014
- length: 288 pages
- dimensions: 236 x 158 x 24 mm
- weight: 0.5kg
- availability: Available
Table of Contents
Contributors
Acknowledgements
Introduction David Wasserman, Jerome Bickenbach and Robert Wachbroit
1. Assessing quality of life: clinical versus health policy uses Robert Wachbroit
2. Predicting genetic disability while commodifying health Anita Silvers
3. Preventing genetically transmitted disabilities while respecting persons with disabilities Dan W. Brock
4. Disability, ideology and quality of life: a bias in biomedical ethics Ron Amundson
5. Values for health states in QALYs and DALYs: desirability versus well-being and worth Erik Nord
6. Preventing the existence of people with disabilities Jeff McMahan
7. Where is the sin is synecdoche? Prenatal testing and parent-child relationship Adrienne Asch and David Wasserman
8. The social context of individual choice Tom Shakespeare
9. Disability and health systems assessment Jerome Bickenbach
Index.
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