Personalised Medicine, Individual Choice and the Common Good
Part of Cambridge Bioethics and Law
- Editors:
- Britta van Beers, Vrije Universiteit, Amsterdam
- Sigrid Sterckx, Universiteit Gent, Belgium
- Donna Dickenson, Birkbeck College, University of London
- Date Published: November 2018
- availability: Available
- format: Hardback
- isbn: 9781108473910
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Hippocrates famously advised doctors 'it is far more important to know what person the disease has than what disease the person has'. Yet 2,500 years later, 'personalised medicine', based on individual genetic profiling and the achievements of genomic research, claims to be revolutionary. In this book, experts from a wide range of disciplines critically examine this claim. They expand the discussion of personalised medicine beyond its usual scope to include many other highly topical issues, including: human nuclear genome transfer ('three-parent IVF'), stem cell-derived gametes, private umbilical cord blood banking, international trade in human organs, biobanks such as the US Precision Medicine Initiative, direct-to-consumer genetic testing, health and fitness self-monitoring. Although these technologies often prioritise individual choice, the original ideal of genomic research saw the human genome as 'the common heritage of humanity'. The authors question whether personalised medicine actually threatens this conception of the common good.
Read more- Features critical perspectives from prominent writers in the fields of sociology, bioethics, law and psychology
- Discusses highly topical issues, such as biobanks, Big Data, the trade in organs and 'three-parent babies' and brings them together using the 'We' and 'Me' framework
- Analyses databases and biobanks, including the UK Biobank and 100,000 Genomes Project, in terms of who owns the data and whether there is a common good in keeping them open and public
Reviews & endorsements
'This volume illuminates the fundamental tension between the individualistic promises of personalized medicine and the demands of social justice. Moreover, it follows this moral fault-line well beyond the territory of applied human genomics, to show how it runs through biomedical practices ranging from infertility treatments, umbilical cord blood banking, and organ transplantion, all the way to how we care for people with Alzheimer Disease and use personal fitness apps to care for ourselves. In the process the volume nicely illustrates why applied genomics cannot expect to outrun this tension by reinventing itself as a 'precision' approach to resolving public health inequities. By demonstrating the ubiquity of the 'me/we' tension in the ways our society thinks about and pursues health, the book challenges the reader to consider personalized medicine and 'precision healthcare' as exemplars of rather than alternatives to modern biomedicine's conventional set of ethical commitments.' Eric Thomas Juengst, University of North Carolina School of Medicine
See more reviews'This important book Personalised Medicine, Individual Choice and the Common Good intervenes in one of the most important debates of our time - and that is access to health care. This is a global matter and it touches virtually every area of human need and desire from organ transplantation to assisted reproduction. This book confronts both our desires and demands and explores the costs of giving the people what they want.' Michele Goodwin, University of California
'This rich collection of essays is a tribute to the generative powers and explanatory scope that co-editor Donna Dickenson's 'Me Medicine versus We Medicine' framework provides. The volume's authors and editors offer trenchant insights into the social, cultural, and market dynamics that underlie the hypertrophy of practices and products shaped by 'Me Medicine', piercing inflated promises and carefully mapping the repercussions for individual patients and for our commitments to public health. Not least, they also chart a hopeful course for future efforts to better balance individual choice and the common good.' Marcy Darnovsky, Center for Genetics and Society
'The contributors to this volume largely offer a counter-narrative to the hype [about personalized medicine]. Assessing personalized medicine from legal, public health, human rights, feminist, technological, ethical, economic, political, and philosophical perspectives, the authors unpack its benefits and potential harms. In doing so, most of them deploy to good effect an incisive heuristic advanced several years ago by Donna Dickenson that divides health research and care into two approaches dubbed 'We Medicine' and 'Me Medicine.'' Gina Maranto, Biopolitical Times
'The multidisciplinary perspectives offered in this book will make it of interest to a variety of audiences, especially bioethics, law, and philosophy students and academics. It will also be of interest to other scholars studying the intersection of medicine, society, and politics, such as political scientists and communications experts.' Maya Sabatello, Hastings Center Report
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×Product details
- Date Published: November 2018
- format: Hardback
- isbn: 9781108473910
- length: 320 pages
- dimensions: 235 x 156 x 20 mm
- weight: 0.58kg
- contains: 1 b/w illus.
- availability: Available
Table of Contents
1. Introduction to Personalised Medicine, Individual Choice and the Common Good Donna Dickenson, Britta van Beers and Sigrid Sterckx
2. Personalised medicine and the politics of human nuclear genome transfer Françoise Baylis and Alana Cattapan
3. Stem cell derived gametes and uterus transplants: hurray for the end of third party reproduction! Or not? Heidi Mertes
4. Personalising future health risk through 'biological insurance': proliferation of private umbilical cord blood banking in India Jyotsna Gupta
5. Combating the trade in organs: why we should preserve the communal nature of organ transplantation Kristof Van Assche
6. When there is no cure: challenges for collective approaches to Alzheimer's disease Robin Pierce
7. Lost and found: relocating the individual in the age of intensified data sourcing in European healthcare Klaus Hoeyer
8. Presuming the promotion of the common good by large-scale health research: the cases of care.data 2.0 and the 100,000 Genomes Project in the UK Sigrid Sterckx, Sandi Dheensa and Julian Cockbain
9. My genome, my right Stuart Hogarth, Julian Cockbain and Sigrid Sterckx
10. 'The best me I can possibly be': legal subjectivity, self-authorship and wrongful life actions in an age of 'genomic torts' Britta van Beers
11. I run, you run, we run: a philosophical approach to health and fitness apps Marli Huijer and Christian Detweiler
12. The molecularised me: psychoanalysing personalised medicine and self-tracking Hub Zwart.
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