Narrating the New Predictive Genetics
Ethics, Ethnography and Science
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Part of Cambridge Studies in Society and the Life Sciences
- Author: Monica Konrad, University of Cambridge
- Date Published: February 2005
- availability: Available
- format: Paperback
- isbn: 9780521540667
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This book explores the way changes in technology have altered the relationship between ethics and medicine. For some inherited diseases, new genetic testing technologies may provide much more accurate diagnostic and predictive information which raises important questions about consent, confidentiality and use of the information by family members and other third parties. What are the implications of this knowledge for individuals and their families? And for society more widely? How should this new information be used? How do people deal with the choices that new knowledge and technologies offer? Drawing on extensive ethnographic research with families affected by Huntington's Disease, and using perspectives from medical and cultural anthropology, the author explores the huge disparity between the experience of living with the results of genetic testing and the knowledge and expertise which are drawn on to develop policy and clinical services.
Read more- Incorporates a wide comparative focus by juxtaposing and offsetting cross-cultural materials from the anthropological record
- Develops novel conceptual insights regarding ethnography's mediation of ethics, bioethics and genetic science
- The book is one of the first ethnographic studies to document developments and personal experiences of the new genetics from the British angle
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×Product details
- Date Published: February 2005
- format: Paperback
- isbn: 9780521540667
- length: 216 pages
- dimensions: 228 x 153 x 21 mm
- weight: 0.35kg
- contains: 1 b/w illus.
- availability: Available
Table of Contents
Part I. Ethnography as Linkage Map:
1. Thinking futures
2. Approaching translocations
Part II. 'Home Truths':
3. Foretelling foreknowledge
4. Tracing genealogies of non-disclosure
Part III. Relational Ethics in Practice:
5. Reproducing exclusion
6. Relinquishing exclusion
7. Conclusion
Appendix.
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